More than just a change in diet: the challenge of Coeliac Disease for parents and how to survive it‏

From birthday parties to our daily breakfast, food plays a central role in our friendships and family lives. As we are inundated with Christmas markets and high definition adverts for festive foodstuffs, it is can be difficult and stressful for children managing Coeliac Disease, and their families.

Source
Researchers from the University of Birmingham are keen to explore ways in which more support can be provided to parents, in a way that understands the complex psychological effects of managing their child’s gluten free diet on a daily basis.
Coeliac Disease is an auto-immune disorder triggered by the presence of gluten, which leads to an immune response which damages the small intestine. Gluten is a broad term for proteins found in crops such as wheat, barley and rye. People with the condition experience a range of symptoms of differing severities; including abdominal pain, weight loss and exhaustion.
In the UK, around 1 in every 100 people has Coeliac Disease – although diagnosis of those with the disorder is worryingly low.
Dr Ruth Howard, from the School of Psychology, explained, “Having your child diagnosed with Coeliac Disease can feel a lot like a journey. And a lot of the parents we talked to say that the road to diagnosis alone was a really difficult experience. They often feel frustrated by primary care who often mis-diagnose the condition, and this is exacerbated by a sense of guilt when they find out what’s wrong with their child. It’s the idea that ‘I should have known’ and wishing that you could somehow take the condition away from your child, were it possible”.
After diagnosis, there can be a lot of stress and anxiety that comes with having to adapt family life, particularly around mealtimes. Gluten free food is improving, but there is still a limited choice and there is an issue with the cost. Staple gluten free foods can be obtained on prescription, but most foodstuffs are around four times more expensive than their ordinary equivalent.  According to Coeliac UK, this may cause difficulties for families on low incomes to maintain their child’s diet. 
Eating out brings further concerns around exposure; and an uncertainty around whether or not a restaurant is truly gluten free.
Dr Gary Law added, “It can be really hard for a family in this situation. Managing your own condition is tough; managing that of your child always heightens anxiety. The shift that people have to make to adjust can be considerable and we wanted to create a resource that can really help to support parents through this.”
The team have launched their second film created to support and inform parents coping with their child’s Coeliac Disease.
Dr Howard continued, “We know that Christmas can be especially difficult for parents. There’s so much that you worry about, party food can be a real concern – but you can feel a constant burden of guilt that comes with feeling as though you are restricting your child from being able to ‘fit in’ with friends and peers.”
“Our goal is to provide parents with more access to information about Coeliac Disease, so that they can understand the condition. It’s about knowledge, but also about sharing some ideas from those who’ve been along the same journey.”

1 comment:

  1. I'm 15 years old. I was born with HIV my mother passed away because of the HIV infection And I regret why i never met Dr Itua he could have cured my mum for me because as a single mother it was very hard for my mother I came across Dr itua healing words online about how he cure different disease in different races diseases like HIV/Aids Herpes,Parkison,Asthma,Copd,Epilepsy,Shingles,Cold Sore,Infertility, Chronic Fatigues Syndrome,Fibromyalgia,Love Spell,Prostate Cancer,Lung Cancer,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
    Dementia.,Tach Disease,Breast Cancer,Blood Cancer,Colo-Rectal Cancer,Love Spell,Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity
    Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Weak Erection,Breast Enlargment,Penis Enlargment,Hpv,measles, tetanus, whooping cough, tuberculosis, polio and diphtheria)Diabetes Hepatitis even Cancer I was so excited but frighten at same time because I haven't come across such thing article online then I contacted Dr Itua on Mail drituaherbalcenter@gmail.com/ . I also chat with him on what's app +2348149277967 he tells me how it works then I tell him I want to proceed I paid him so swiftly Colorado post office I receive my herbal medicine within 4/5 working days he gave me guild lines to follow and here am I living healthy again can imagine how god use men to manifest his works am I writing in all articles online to spread the god work of Dr Itua Herbal Medicine,He's a Great Man.

    ReplyDelete

LinkWithin

Related Posts Plugin for WordPress, Blogger...