The Ponseti Awareness week is here! - World clubfoot day June 3rd


The Ponseti Awareness week is here! Today is World Clubfoot day June 3rd. We are 3 whole years into treatment for Hugo's Talipes. Today Celebrates 101 years of Dr Posenti.


Here's my two previous blog posts from 2013 & 2014
This year has by far been the most rewarding less stressful more fulfilling, Hugo has accepted his boots. 
Words I never ever imagined I would say. 
I am bursting with proudness. 
He has come such a long way from the teeny tiny curled up feet baby I brought him 3 years ago. 
I spent 4 short & wonderful days with his beautiful beautiful feet. 
I said I wouldn't cry whilst typing today....
It's the strangest feeling giving birth this your perfect bundle of newborn squidgy'ness to adore & full in love with every blemish & imperfection of your 'perfect' baby for then at just 5 days old change something. To 'correct' his feet meant I lost his beautiful curly happy feet. To change something that somehow my body made.
Ok so my body made my baby wrong. To be told at my 20 week scan that my son had developed 'pigeon feet' & that he had three cysts on his brain to then be told he could very well have Edwards Syndrome or Downs Syndrome & I should look into a medical abortion..... To just 'get rid' of my baby. Like he was nothing just another statistic for the doctors. 
I was having a boy. To that day I couldn't care less what the gender was I just wanted a healthy baby. 
I wanted a baby to be able to bring home in my Maxi Cosi Car seat. 
I remember going to bed that night & listening to my Husband snoring away, I placed my hands on my bump & felt my boy moving. How could I just 'give up' my boy.? 
I made a choice that night that whatever happens I will meet him. He will stay tucked up inside me for as long as I can & there is absolutely no way will I be saying good bye to him. 
I put my whole trust in Gods hands & prayed day after day. 
I had already bonded with this baby. He is mine. I love him as much as I love my 2 year old daughter. 
I made the choice to keep my pregnancy going. 
Thank goodness I did because my boy turned into my beautiful newborn bundle of H. 
I had many scans in my pregnancy in one of the top London Hospitals they kept an eye on his growth & his cysts on his brain (They amazingly disappeared) So the only marker we had left was his Bilateral Talipes. 
This is H at just over 3 years old. He is wearing ADM boots they're on trial at the moment.
H's next check up is in about 2 weeks I am so excited to tell his Physio how well he is doing.
This time last year I was having a complete boots and bar battle on my hands daily.
This is him last year...





Some more information for you from the Steps Charity Wordwide Facebook page :

• Often called ‘Talipes’, Clubfoot affects a staggering 1 to 2 in every 1000 babies and occurs more often in boys than girls. In the UK it is estimated that every year approximately 1000 children are born with talipes. 


• Talipes/Clubfoot is often detected during antenatal scans, typically at the 20 week scan. However, there is limited moral support provided to the parents once the child is diagnosed. At times, the option for early termination of pregnancy is discussed before an appropriate specialist has had an opportunity to review the case. This results in parents being under significant pressure to reach a conclusion with limited information available. 
• Until relatively recently, in certain countries, clubfoot was treated with major surgery. The results from surgery were often ineffective. Increasingly more and more evidence indicates that the longer term impact of cases that were initially considered successful outcomes were also poor, leaving the feet of patients stiff and painful over time.
• World Clubfoot Day takes place on 3 June 2015 and this marks the 101th Birthday of Dr Ignacio Ponseti - the pioneer of a global, minimally invasive and successful treatment for Talipes/Clubfoot. 
• The Ponseti method involves a specific casting technique followed by a strict routine requiring a boots and bar brace. The results have been remarkable, when treatment is performed by specially trained practitioners. Poor technique and straying from the correct wearing of the boots and bar can lead to poor results. 
• To date there are no official guidelines describing the exact Ponseti Method and no governing body to ensure that practitioners are adequately trained to carry out the treatment. 
• Untreated clubfoot is a leading cause of physical disability in the developing world, leaving children unable to walk properly. Over one million children around the world currently live with the pain and stigma of untreated clubfoot.
• The solution is campaigning to ensure that;
o Every parent who has a child diagnosed with talipes obtains the best possible support and information at antenatal stage in order to make an informative decision.
o Clear guidelines are available, (from early detection through pregnancy, early months and treatment);
o Training on the guidelines is provided to relevant staff (GPs, health visitors etc.)
o Every parent is aware of the options, and has clear facts about the likely prognosis of Ponseti method and what is entails.
o STEPS has the necessary funds to continue to operate a helpline, website and distribute booklets to support anyone affected by the talipes/clubfoot. 


H with his Casts on 


H getting his casts fitted.


You can catch up with all my Talipes posts here 


World clubfoot day

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