I know you hate seeing him in pain, you hate hearing him cry. I know all you want is to take the pain away.
I totally understand that you get jealous over all the 'extra' attention we give your brother.
Think back to the days we didn't even know if your little brothers legs would be strong enough for him to walk. The huge proudness that overcame your body to see him reach that whopping great big milestone.
I could see on your face & hear in your voice just how proud you were. We all were. It brought tears to my eyes seeing him walk. Even if it was a few steps.
Your brother completely utterly loves and trusts you. He looks up to you like nothing I've ever seen.
You both get to experience an unbreakable friendship like no other.
The bond you two have is indescribable. You're his sister, his friend, his protector. I see you playing in soft play together. I see you explaining to people about your brothers special boots.
I want to burst with pride overtime I see you two together or 'helping to put his boots on'.
We feel instantly proud when you've been at school all day but the first thing you ask is "How did his hospital appointment go?" You do such a crazy amazing job helping us. It surely takes a wonderful little girl to do what you do on a daily basis. I just wanted to say thank you and I'm sorry...
*This blog post was written last year - It's taken me a while to get the courage to post it & admit to myself how hard things can get. Although things have greatly improved... *H's boots have recently broken before this we were still having the battling nights.